The transition from childhood to adulthood can be difficult as individuals learn independence and responsibility. For adolescents and young adults with medical conditions that originated in childhood, this transition can be especially challenging due to complicated medical issues and the role patients’ parents play in decision making. Many patients are lost to follow up or experience significant delays in care before seeing a new physician. Many have challenges with adherence to medication regimens which results in acute complications and worsening of disease state. Age-appropriate preventive health needs may not be met.
Finally, patients may have pronounced psychosocial needs due to stress. Our clinics provide medical care and social support services to the growing population of adolescents and young adults with chronic childhood conditions including but not limited to congenital heart disease, diabetes, sickle cell disease, cystic fibrosis, anorectal malformations and Hirshsprung’s disease, Downs syndrome, childhood cancer, transplant, neurodegenerative, disorder, intellectual disability, autism.